Archive for April, 2008

Southern California H Pal

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Hi, I’m Faith

I was diagnosed with HSV2 in the Fall of 2006. I went through all the emotions. I went through betrayal (non-disclosure), feeling un dateable, diseased, and angry. I thought that no man would ever want to date me and that I could only date those that had HSV2. Negativity had engulfed me.

In time, I realized that I had control. Not the virus. It was my reactions that had caused all my emotional pain. I was my worse enemy. Thereafter, all those bad feelings I had, were now in the PAST. It was a hard journey, but with a lot of praying and reflection with my “life tools”, it is now a minimal part of my life.

My dating life hasn’t changed much. I date someone based on character, not the commonality of a virus. My standards are the same before and after my diagnosis. I refuse to settle because of some manageable “little bug”. I’ve learned to “squash” this pesky bug when it tries to enter into my mind. I call these squashing mechanisms my “life tools”.. Since, having herpes, my convictions have become stronger. I am more determined and my spirituality has soared.

I am a board member of my local support group and a moderator for our local social group. I have done a lot of research on this virus and have spoken with a virologist who specializes in STDs.

I know of many success stories and I’m here to tell you that it only is as big as a part of your life as you let it become. I strongly believe in herpes advocacy. I do understand the pain of those newly diagnosed or those who’s timetable in coming to terms with it … might take a while longer.. I welcome questions or concerns that you might have.

I’m here to help……

Write to me any time

H Pals Home

The Phone Call that Changed my Life – A Study

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telephone-cartoon

A few years ago, when I was 24 yrs old, I sent out a mail-in HIV test kit that I had purchased from my local drugstore. About a week later, I called the phone number and was given the diagnosis that would change the course of my life forever…over the phone. The weeks and months that followed irrevocably shaped my view of life and the disease that threatens it.

I am now a graduate student at San Francisco State University and I am conducting a research study on how HIV/AIDS diagnoses are delivered and the impact of the diagnosis.

PATIENT/CAREGIVER COMMUNICATIONS
AND THE DELIVERY OF BAD NEWS

A STUDY INVOLVING HIV POSITIVE PATIENTS

I am conducting a study about medical bad news delivery and the communication between patient and care provider. I am particularly interested in looking at communication about HIV/AIDS diagnosis and the effects of the diagnosis. I am hoping to learn more about this kind of communication and offer insights to care-providers about the effects of these interactions.

If you feel you are able to share a few details about your diagnosis, I invite you to fill out a questionnaire about your experiences when you were given the news about your HIV status. Your responses are confidential. Data collected from this study will be used in completion of a master’s program at San Francisco State University. This study is open to men and women 18 or older.

Please visit the website below to participate

Talk about HIV and other STDS

College Students Please Read!

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Hey, I am a journalism major in college and for my final paper I need to write an article of my choice. So I picked one that every college student can relate to: stress.

I am trying to find students from all different colleges and situations. And what better time to ask these questions with finals coming up! lol If you can take the time out to answer these questions for me it would be GREAT!! Thanks :o)

1. Just some basics: First name, Age, Grade, State, College or University (school is optional)

2. Do you live on campus? off campus apt/house? With parents?
- Do you think living in one of those three locations affects the amount of stress you feel?

3. From freshman year to where you are now, which year have you felt the most stressed? Why?

4. Do you ever feel overwhelmed with midterms? finals? important projects?

5. How do you cope with stress that you feel?
- Do you find yourself drinking or doing drugs when you feel stressed?

6. Do you feel your major affects your stress levels?

7. Does your stress or anxiety come from other things besides school?

8. What do you think a college student can do to avoid stress or deal with it better?

Post your answers here

Here’s a Familiar Song for Ya!

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Hat Tip! ISIS-INC.org

Giving parents the courage and information they need to talk with their children about sex

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Shut Up N Post! STD Message Board

Real Life. Real Talk.

Sex Ed for Parents

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Sometimes parents need a sex ed class.

Why?

Because sometimes our parents didn’t have parents to talk to about sex.

That’s why sometimes parents need sex education classes too.

Why not?

I think it’s a good thing!

Shut Up N Post!

Let’s Talk about Sex, ok?

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Real Life. Real Talk.

Let’s Talk about Sex

Let’s all be a voice for Sexual Health

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Real Life Real Talk

Shut Up N Post! STD Message Board

Fun and Fabulous Campaign created by Internet Sexuality Information Services (ISIS)

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undies

With recent statistics published by the Centers for Disease Control and Prevention that one in four female adolescents in the U.S. have a sexually transmitted disease, this timely campaign tackles this public health issue head-on.

The campaign wants people to talk about protecting themselves BEFORE they get naked – and asks anyone to design a pair of boxers, panties, or a t-shirt with a message about playing it safe. ISIS will award scholarships and personalized undies for winning entries.

The campaign and all of the details can be found at: www.undiescontest.com

Talk about STDS

What the Fuck is Happening?

Posted in Health Buzz, Readers Write In | 3 Comments »

fish1

I remember when I was a freshman in high school, I was sitting at a lunch table in the cafeteria with 2 of my friends. A pretty blonde girl walked by, she looked very plainly dressed, and sat at the table opposite of us by herself to eat. I wondered why a girl that pretty and thin wasn’t sitting in a crowd of friends.

One of my friends notices me looking at her, and leans over to whisper in my ear, “That’s Rachel, the girl who has herpes, I heard she had sex with just about every guy in the 11th grade, I bet she’s sorry now.”

“How do you know she has herpes?” I asked.

“Because everyone knows, thats why no one will go near her. Lindsay used to be her best friend in middle school, and she told her. Then when they stopped being friends, anytime Rachel would be at a party, Lindsay would go around and tell every guy that they better not get too close to her, or they’ll get herpes too, so it didn’t take long for everyone to find out.”

I instantly felt so sorry for the girl. Pity. I got the “I’m so glad I’m not her” phrase in my head. But then I also got the, “Well that’s what happens when you have sex with too many guys!” phrase in my head.

I lost my virginity to my best friend at 16, and he lost his to me. We were not dating, nor did we, we just were kinda like, “Hey, we gotta lose it some way right?”.

I scored high enough on tests to graduate high school a year early, and get a full scholarship to my dream college. Then I met my first boyfriend, we were together for 2 years. I went to college for 1 of those two years….100 miles away….and saw him on the weekends. But of course I knew that he would never cheat on me…we were too close for that!

We broke up when I was 18. I left college to come back to my mom’s city, to be close to her. When I was 19, I met my 2nd boyfriend. We took it slow and used protection for the first few months, then we just figured that as long as we were monogamous we shouldn’t need to. He told me he had only slept with 3 other girls, and I had only slept with 2 other guys, so the chances of any strain of any disease being present didn’t even cross my mind. A year went by, we were still going strong, starting to talk about the future, marriage, all that dream stuff.

Right before Christmas, I started feeling soreness in my vagina area, just like an ache. I would touch the sides of my groin and my lymph nodes were huge and swollen. I didn’t pay a lot of attention to it, I figured it was just some bug my body was trying to get out. Until I peed one night. I sat on the toilet, started to pee, then I felt this burn, like someone literally lit a match right on my vaginal lip, by the opening. It was a burn that jolted through my whole body, it hurt so bad my body automatically stopped peeing, and I just doubled over onto the floor cupping myself. All I could think was, “WHAT THE FUCK IS HAPPENING?!”.

After a few minutes it subsided, and I grabbed for a mirror. I looked down there and saw a small, the size of a baby’s pinky finger nail, white lesion. I freaked. I was on the internet faster than a bullet. All the pics I searched on Google for “herpes”, “lesion”, “genital sore”, didn’t look anything like what I had. they all looked like a cluster of small red pimples, when I had a white open sore. I was slightly reassured.

When the next day came, and my blister hurt so bad I could barely get into my car, I knew I had to go the doctor. I was very open with my boyfriend about it, assuring him and myself that it couldn’t be an std, as long as we didn’t cheat on each other, that it must be something else so lets just go get a test and be sure. I went to an urgent care center, and got a culture swab, the doc apparently not caring how painful it was, because I started to cry it hurt me so bad. He said I had to wait 7 days to find out, and that the results would be sent to my regular doc. I couldn’t wait that long.

After three days I got an appointment in to see my regular doc, by then the blister was bearable, but still painful. My doc said that there was no point in taking another test if i already did one, but she could at least look at it and tell me what she thinks. As I was spreading my legs, I asked, “So, you’ve seen what std’s look like, I mean you can probably guess what it is right?” She said maybe. As soon as she looked at my horrible lesion, I could see the disappointment in her face. She said, “well, it looks like herpes to me….sorry.”

I just sat there silent. What do I say? Your sorry? Yeah I bet you are. Then I switched to “but its possible that its not, I mean we can just wait for the test results”. She agreed that we should wait. The whole drive home I kept telling myself that the doc didn’t know what she was talking about, that logically there was no WAY that I could have herpes. It was just impossible. I had only slept with 3 people. I knew girls who had slept with 30 guys and didn’t have an std.

Well as I’m sure you can guess, 4 days later, my Doc called me, in the middle of work mind you, to tell me that the test came back positive for HSV2. Before I freaked out, I calmed myself down enough to ask her some questions about it.

“So what are my options now?”

“You take one acyclovir pill every other day for the rest of your life, if you miss one, then the herpes will come back 10 fold and you will have about 20 of those little sores” (that’s not true! – Angela)

“How do I know who I got it from?”

“Unless you have cheated on him, you got it from your boyfriend. If it was anyone before him, you would have known it by now.” (that’s not true either – Angela)

“What happens if I want to have baby now?”

“You can get inseminated by your boyfriends sperm so that you don’t have unprotected intercourse, and you will have to have a C-section” (that’s not true either, what an idiot of a doctor! – Angela)

“So I can’t have sex with my boyfriend even though he has it?”

“Not without a condom. If you don’t wear one, you will just re-infect each other over and over again, making it worse.” (again.. that’s not true! – Angela)

What else was there to say? This doctor had summed up the rest of my love life in one short sentence: It is over. I was 20 years old, had not cheated on my boyfriend, and was being told my love life was over. It was all I could do to swallow my tears and go back to finish my shift at work. I think I had to run into the bathroom to sob about 10 times until I finally got to go home.

So what did I do when I got home? I took it all out on my boyfriend, the guy who I knew gave it to me. I said horrible things to him, cried about how he ruined my life forever, and because of him I am disgusting and no one will ever want to touch me, I really let him have it. I let him have it so bad he broke down crying, saying how he just didn’t understand how he gave it to me, and that he swore he didn’t know, and didn’t cheat on me. He kept apologizing. I wasn’t listening, I was too busy screaming about what a lying, cheating, disgusting person he was.

The next day I convinced him that he needed to go to the doctor to get a prescription for it as well, so that he didn’t get any break outs. He said he didn’t understand why he needed to take medicine for it if he hasn’t even had a breakout, but went along anyway. He was showering me with gifts and crying and telling me how much he loved me and how sorry he was the whole day. I was a total b*tch to him. When we get to the doctor she said that in order for her to write a prescription she just had to test him to show positive results. We said no problem, she drew his blood, and said to wait for a letter in the mail with the results.

Five days goes by, I am up at work again. I am a little more calm about the situation, but if I think about it too much I start to cry again. I just couldn’t quit thinking, “if only I had never met him my life wouldn’t be ruined right now”. The phone rang, it was my boyfriend. He said he got the letter.

I said, “so when do you go pick up your pills?”

He said, “I guess I don’t, the letter says my test was negative.”

Silence……………I asked him to repeat what he just said, then hung up.

I felt faint. He didn’t have it? That’s impossible. There is no way. When I got home, I had never felt so bad. I expected him to be all high and mighty, and get mad at me for blaming him. I expected him to blame me. But he didn’t. He was just as loving and caring as he was before. He just acted like nothing was different. He still wanted to be with me. Crazy huh? I still can’t believe it.

Over the next few weeks, I did a lot of herpes reading, both in books and on the web, and I realized, that most of what my doctor told me was wrong. Most of what I had ever heard about herpes was wrong. The more I read the more I couldn’t believe how little facts people actually knew about herpes, and how common it is.

They say 1 in 4 people have genital herpes. They say 40% of women who have vaginal birth to children have genital herpes. This relieved and scared me. Too many people are infected and don’t know it.

It has been 4 months, and I haven’t had another outbreak yet. I am still taking it a day at a time, and am still in the acceptance stage. One day I would like to be comfortable enough to go to schools and talk to teens about stds, and give them some REAL facts. Maybe then the odds won’t be so against us.

Read more inspirational stories here

Talk about STDs here

All the comments that you see in RED throughout the story I (Angela) put those there so that people don’t freak out when they read the story. Unfortunately there are healthcare professionals that obviously have no idea what they are talking about.

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