Posts Tagged HEP

NIAID Investigating New Treatment for Hepatitis C in Co-Infected Patients

Posted in Health Buzz | 2 Comments »

The Centers for Disease Control and Prevention estimates that approximately 25 percent of HIV-infected people in the United States are also infected with the hepatitis C virus (HCV).

HCV infection is a major cause of liver damage and progresses more rapidly in HIV-infected people. Researchers at the National Institute of Allergy and Infectious Diseases (NIAID), part of the National Institutes of Health (NIH), are enrolling volunteers for a clinical trial to evaluate a new treatment that may suppress the HCV virus in HIV/HCV co-infected patients.

The clinical trial is being conducted at the NIH in Bethesda, MD.

For more informationHIV InformationTalk About HIVHEP InformationTalk About HEP

NIAID News gave me permission to share this information with you. I want all of my readers to know what is going on with HIV. Thanks so much for reading my blog.

Hi Friends! TGIF! :]

Posted in Health Buzz | No Comments »

I sent this note to everybody in my address book so 1.) I can say hello and 2.) I can see who’s e-mail addresses still work. I’m also posting it on my blog so those that are following it can stop by and say hello. I’d love to hear from you and find out where you are reading this blog from. Is it helpful to you?

I know I haven’t been around much lately. I’ve been pretty busy getting the 17 year old off to college, the 5 year old off to kindergarten, and the 3 year old still stays home w/me. We are super busy these days between swimming lessons, bible study, awana, working out at the gym, and still trying to keep up w/everything — it’s any wonder I make it through all the e-mails OR all the projects that need tackling on a daily basis. But … that’s life. You get what you get and you don’t throw a fit. You just take things one day at a time, one moment at a time, one hour at a time, and you do what you can when you can get it done. Right?

I have a confession to make. I have been playing that scrabble game on Facebook called Lexulous. It’s pretty fun. What’s neat about that game is you don’t have to sit and finish out the game. You can log on, make your move, and then go about your business. You can also have more than one game going so that you can make your move on several games and then go about your business. It’s just been nice to take a break from the usual and have some fun. Even if that fun is just for five minutes in between everything else going on.

Ok … so I have been behind on getting my site updates out and for that I do apologize. Two days ago I did manage to get a few things tackled. Here’s what I completed:

1.) People have had some really cool things to say about me and the site which is nice. It’s nice to get encouragement, ya know? So thank you for that! :-)

2.) Do me a favor and make sure I’ve got your social group listed, k? There are a few newbies on the page and some national events to check out. Let me know if you’d like me to add one of your social outings. I’m happy to do that for you.

3.) Would you believe the last time I posted something on the blog was September 1st? And before that August 28th? I promise I am not slipping. I was able to get a couple of new posts up tonight. I think you’ll be able to appreciate them.. at least I hope so.

The Bathroom And Herpes
You Are Beautiful Inside And Out
Personal herpes questions asked & answered

4.) Are you guys ready for the fall? I love this time of the year. The only thing I could really do w/out is the high pollen count. Oh yeah.. one more thing. Picking Up the Pieces will be celebrating it’s 11th birthday. I hope you will stop by and say hi. We are 11 years old on October 1st. That’s just around the corner.

Ok… I’ll be checking the rest of my e-mail tomorrow and will get the rest of the stuff added here and there soon. I’ll probably send out another update when I finish just like this one.

Happy Fall Y’all,

Angela ;-)

Twitter: @Yoshi2me
Herpes Help
Message Board

Feel free to share this note with friends that share in our common bond. [[hugs!]]

When we aren’t on Picking Up the Pieces you can find us here:
— We have a pretty cool VIP room going. So far 30+ people have shared their photos. It’s been wonderful being able to put a face with a name. What’s nice about this forum is the only way to get in is to share your photo. Once your photo is posted, you get added to the VIP room. If you decide to take your photos down at any time, we remove the photos upon request, and then we take you off the VIP list. Pretty Cool, eh? Let me know what you think! :]

WOW – I guess I had a lot to say. ;-)

You Are Beautiful Inside And Out

Posted in Health Buzz | 2 Comments »

Dear Angela,

Just shy because of this condition, Herpes Type 2. I leave your herpes biography on my computer everyday for when I come home I can read it again because it makes me feel so much more of a person.

I spent hours on the computer wanting to know more about this condition and everything I’ve seen couldn’t stop my tears but YOU! There’s nothing like it, having the support from people more so YOU! with the same problem.

Angela, lately I have been having trouble with myself as in thinking of harming myself but I came across you and I want to thank you so so so much there for not feeling so alone.

Sadly there are no groups here in my city for us to talk to face to face with people with similar conditions but I’m trying. For now Angela I need you and I have questions, simple questions to ask you if you dont mind?

Thanks again for you time… you have no idea what an impact you are to me….

~ Anonymous

Dear Anonymous,

I will do my best to answer any questions that you might have so feel free to write me any time day or night.

Before I get to your questions I just wanted to let you know that I have a listing of Support Groups, Social Groups, and even Social Events that are planned for the year over on my main site: Yoshi2me.com aka: Herpes Help – I hope that is going to be helpful for you.

Here’s more information About Herpes too. :]

There are also two online support groups you might want to check out: Picking Up the Pieces as well as our Shut Up and Post! STD Message Board. I’m almost positive you will feel better about everything once you’ve created an alias with which to post and start communicating with other people.

Be sure and pick an alias and e-mail address that nobody knows about so that you can have some sort of anonymity. Whatever you do, it’s better not to use a work e-mail addresses as sometimes those are monitored.

Ok… so I will do my best to answer your questions and if any of you out there have questions for me you are welcome to write to me too from here. I will post your question here on my blog and answer your question within the same post. Don’t worry, I will tweak your questions and make sure to take out any personal identifiable information. Everything that gets posted does so anonymously and this way we can kill two birds with one stone and help others find the answers that they are looking for without giving away who you are.

Lastly, you are the wonderful human being that God created. Having herpes doesn’t define who you are. You are beautiful inside and out and life is always worth living – ALWAYS. You are never alone and only an e-mail or posting away. [[[hugs]]]

Dear Seeking Asian Man

Posted in Dating Buzz, Health Buzz | 3 Comments »

flying-leap

Over on Life After Herpes

SeekingAsianMan wrote in with a subject line that stated the following:

Trying to find an Asian or Native American male with H is hard

SeekingAsianMan had this to say:

I’m single 23 mature and living in northern california.

I responded with this bit of advice:

You know this isn’t a dating site, right? Here’s a list of herpes dating sites as well as regular every day dating sites:

http://yoshi2me.com/herpes-dating.html

Some are free and others… not so much.

Good luck with your search.

Numb Nuts (SeekingAsianMan) had the nerve to write me back with the following:

Guess I’m done then. Those sites have hardly anyone on them. U have been on them all. Suicide is my best bet.

You know what SeekingAsianMan?

I feel sorry for you. You have resorted to scrounging around for a man on a yahoo group that was geared for support NOT online dating. Are you THAT desperate that you’ve created a screen name called “Seeking Asian Man” OR is that the best you can do?

Why don’t you stop begging to be in a relationship and concentrate on the parts of life that will get you out of your particular frame of mind? I am not on all the yahoo groups.

The only yahoo groups I am on are the following: Picking Up the Pieces, South Florida H Friends, Life After H, and Oklahoma H Club. None of which are online dating sites.

Perhaps if you got your head out of your ass and stopped being so rude you might find a date, or two, or three. And since you seem to have all the answers stop writing to people like me who don’t really have the time to spend on people like you.

Oh how I cherish Life’s Irony

Posted in Health Buzz | No Comments »

art-heart

Our discussions are so heavy on PUP I thought I’d share some lighter fare associated with a girl I took to Jamaica after knowing her for only two weeks.

We share a strong mutual attraction, but decided to wait before having sex. Wheew! I can relax about having “the talk” during our vacation.

Day one was filled with rum punch, long talks and nude walks on the beach. That night our passion tested us, but success! we made it to the morning without doing it.

On day two experiences as routine as a conversation over breakfast revealed connections with the excitement of finally using those discarded puzzle pieces from previous relationships. The sun went down on day two, but we brought its heat to the bedroom. OMG! She cradled my face with her hands and said “I’m ready”, but I refused. Again success! we are 2 for 2.

The next morning we awoke looking silently into each others eyes and my inner voice kept urging me relentlessly. Tell her, tell her, now is the time, tell her! I succumbed and at the risk of ruining a beautiful moment (not to mention a $3K vacation) I committed.

“There’s something very important that only three people know about me and we have to talk about it before we have sex”.

“I have to go to the bathroom”, she said immediately. She returned and laid next to me. ?Did I miss the toilet flushing?

Her face was strangely relaxed. Still nervous I blurted, “I have Herpes“.

“Me too”.

Stunned I said, “I have to go to the bathroom”. I stared in the mirror at myself, grabbed my toothbrush and brushed my teeth talking to myself out loud in disbelief. “I memorized my facts and figures, and rehearsed my story so what the hell kinda answer is that!” Then I realized that my inner voice was forcing us to reveal yet another connection. Two more pieces fall together.

Fear hit me and I freaked out.

I wasn’t ready for a serious relationship. I opened the bathroom door stating, “You’re early!”, like I could pop her back in the oven `til I was ready for her. “Honey, come and let’s finish our talk”, she said softly. Then she said something only us “PUPies” could understand, “I was hoping that you had Herpes“.

Oh how I cherish life’s irony.

Don’t leave your soulmate out there alone because you have Herpes that’s just fucked up. Happy searching yall. -Anonymous

Read more Telling Stories
Read more True Inspirational Stories

Hepatitis C: Dying for Change!

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May 19th is World Hepatitis Day

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whd2009poster

Tuesday, May 19th is World Hepatitis Day and I am reminding everyone on ALL my different groups that 1 in 12 people on this planet have some form of hepatitis!

Are you the ONE in TWELVE? Don’t take your status for granted. Get Tested! Especially for Hepatitis C!

You can learn the facts about Hepatitis A, B and C here:

www.aminumber12.org and www.nvhr.org.

Please take the time on Tuesday the 19th of May to educate 12 others about hepatitis. Remind them to get vaccinated for Hepatitis A and B and to get tested for Hepatitis C!

Also please take a moment and check out my friend Kelly’s “Living For A Change” video that was inspired by our sweet Kristina’s “Dying For A Change” video. Awesome Kelly! Keep up the good work!

For those of you that don’t know, Kristina sadly passed away at the young age of 32 from liver cancer from Hepatitis C on 2/21/09. She was an R.N., BSN and an inspiration and support to many over the years! She is greatly missed!

You can also help H.E.A.L.S help others by donating to:

H.E.A.L.S of the South
PO Box 180813
Tallahassee, FL 32318
or through the paypal buttons at:
www.HEALSoftheSouth.org or www.HEALSoftheSouth.com

Also there is a paypal button on my My Space at www.myspace.com/figmento along with some facts about Hepatitis C! :-) THANK YOU!

Take care of each other and take care of yourself! You are your most important advocate!

healslogonorm

Visit our Hepatitis Forum and let us know what you think!!!

Getting Tested for STD Awareness Month

Posted in Health Buzz | 2 Comments »

stdawarenessmonth

“Hello. We’re from ASHA and are here to pee in a cup. Is now a good time?”

Earlier this month, as ASHA launched our STI Awareness Month activities, I wrote a short letter that cheekily called on more people to “pee in a cup” (primarily to test for chlamydia). I wanted to point out that – along with lack of health insurance – social barriers (like stigma and lack of awareness) keep many individuals from seeking the sexual health care they need.

Every day ASHA interacts with thousands of people seeking information and support around issues of sexual health. We’ve urged countless individuals to take the initiative and talk with their health care providers about sexual health. This isn’t easy and, for many patients and providers, can be downright embarrassing. We gently acknowledge all this when chatting with our clients, but our message remains the same: Anyone can be at risk for STIs. Be smart. Have the conversation. Get tested.

Great advice. And I’ve never followed any of it.

I know better but have never felt the personal need to have the same conversation with my health care provider – or most of the tests – that we routinely urge for others. What do my staff and I really know of the anxiety provoked by “peeing in a cup” if we’ve never done it? It was time to try it out for ourselves.

With my inner iPod seemingly stuck on a lecture entitled “what’s good for the goose…,” one of my ASHA senior staff members and I headed to a clinic where we each peed in a cup and gave up a little blood. Then we waited for our test results for chlamydia, HIV, syphilis, hepatitis B and C, gonorrhea, and herpes simplex virus 1 and 2.

Here we were, two seasoned professionals who work in the field of sexual health every day, and the idea of getting tested was not without a bit of nervous giggling. What would the clinic staff think, having us tested for eight different infections? Would they silently (or perhaps not so silently) judge us? Also, STIs can be silent for months or years, and a person with either infection can be unaware for many years, potentially even decades … What if? What if?

Soon, our test results were available. The wait almost unhinged my ASHA buddy – a veteran who’s been in the field 12 years and has more than a clue about STIs and his relative risk – who both compulsively checked the site to see if his results were back and declared he was throwing away his PIN because he’d rather not know.

We did this to better understand what it’s like for those who follow our recommendations to get tested for STIs, and the process certainly educated us. As unnerving as testing can be even for people well versed in this area, this experience drove home how difficult it might be for someone who isn’t as savvy. ASHA and others working in public health put so much energy into providing resources for those diagnosed with STIs, and that’s a good thing. But it’s important not to ignore the “front end” piece of preparing people to get tested in the first place.

I did it. I peed in a cup! Have you? Stay healthy!

Sincerely,

Lynn B. Barclay
President and CEO
American Social Health Association (ASHA)

Thank God for Moderators :]

Posted in Health Buzz, Readers Write In | No Comments »

Okay, let’s put this drama to rest. No, it’s not a rude way to ask such a personal question. There was no inflection of an attitude when I asked that question. How she answered it (yes or no) would determine how I would respond to her post. There is a member on this site that WAS raped and consequently received The Gift at a very young age so SHE clearly didn’t sign up to have herpes but I have a feeling that that isn’t the case with this particular member. Does it make me angry at the American way of blatantly NOT taking responsibility of their own actions? Yes! Am I firm believer that YOU ARE THE MASTER OF YOUR OWN FATE? Yes, and yes I was yelling. “Acceptance” is the first step in healing but most of what I hear is that people don’t even want to accept their own role in contracting this virus. As a moderator, I feel like I have to be touchy-feely all the time but sometimes (just like Angela) I get ANGRY listening to the whiners that have no intention of taking our advice because they are too busy feeling sorry for themselves. “My dating life is over” … pfffft! Is that all you are??? A walking piece of flesh that’s only good for sex??? Do you plan on jumping into bed with EVERY person you go on a date with??? C’mon, people … raise your standards!

Yanno, when I was diagnosed with this at the age of 20, I stayed with the man that I was with at the time that may or may not have given this to me (if he had it first, he was asymptomatic). I went through all of the stages of grief including (and especially) anger. Eventually, I married him then he died in 2002. It was like being diagnosed ALL OVER AGAIN. I thought NO ONE would want me and I thought that the worst thing about herpes was that it wasn’t AIDS and it wouldn’t kill me and I would have to live with this for the rest of my life. I looked at myself, in essence, as a leper. I felt everything that all of you are feeling now TWICE. Through an unrelated support network, I came to realize that that is “stinkin’ thinkin’”, it was stupid and it wasn’t benefiting me at all. I am STILL beautiful, intelligent, witty, loyal … ALL of the things that I was before and, if you ask me (and even most men), I’m still better than most of the competition out there because I took the necessary time to learn who I am without a significant other. I don’t NEED a man to define who I am and I look at most of them as not being worthy of The Talk.

The problem with this virus is that it seems to be drawn to people that had poor self-confidence before and this is enough to send them over the edge. If you didn’t love who you were before your diagnosis, then take the time to make it happen now. What exactly is so terrible about not being in a relationship or dating anyone? I don’t get that but, then again, I was a totally different person when I was in my 20s and I wouldn’t go back to that period for all the money in the world.

Yes, we refer to this as a ’skin condition’ or as ‘not a big deal’ and someday (if you try), you’ll get there, too. I’m sure that we are all sorry that this obviously offends some of you but I’m not trading my attitude for the one you have. And you will NEVER find me doing something so irresponsible as having sex even once (for some of you, MORE than once) without disclosing my status. If you can’t hold your liquor, you may want to give it up because what you’re doing is not fair and it’s not moral.

Just my two cents worth,
Jennifer

Embrace the prospect of your future

Posted in Health Buzz, Readers Write In | No Comments »

friendsAlong with the list of things you are going to do to turn your life around I made a list of things I AM going to do to turn my life around.

I asked my friends, those who know I have herpes and those I’ve just met, to describe me in one word.

With the list of adjectives and some window markers I wrote these kind words on my bathroom mirror to help me remember I am not disgusting, I am not untouchable, etc.

I didn’t think it would really help much, but its good to see that even with herpes I am everything I was before and much much more.

I am Beautiful
I am Compassionate
I am Kind
I am Resilient

It sucks, don’t get me wrong, but don’t let it rule your life.
Mourn the loss of your past and embrace the prospect of your future.

Posted by a caring soul on Picking Up the Pieces.
Read more inspirational messages on our True Stories pages.